I have just watched ‘DIY SOS’, where the team were repurposing a house for a family with disabled twins. They also had an older son, who helped with their care and very much took a back seat because of the amount of care which his brothers demanded. I instantly felt so sorry for him, all he wanted, was for his dad to be able to play football with him sometimes. The team made the house more efficient and made a mini football pitch and goals for the eldest son to be able to play with his father. It was a simple request that meant so much to him.
My friend Claire works for a charity which helps carers, including young carers, to have a better life; to be more supported, to know which services to access and to run funding days to help out. They do a fantastic job but they are a charity and they have to apply for funding each year, to me this is wrong on many levels. Firstly, surely the government should have an organisation, which they set up and fund, which does the job? Secondly, each year, so much time and energy has to be put into applying for funding. Thirdly, when the charity doesn’t get the funding, as has happened in Claire’s workplace, the talented and well trained staff aren’t always taken on, so their knowledge and expertise is lost and wasted.
It just seems such a pointless process, especially as there are so many carers in the UK looking after loved ones. I had my two carers, my champions, my children. Ella was only 17 when I became ill and she had to go through her A levels under immense stress. Jack was only 20, an adult yes, but should he really have been one of my main carers? Neither of them should have, in an ideal world, unfortunately, we don’t live in an ideal world where everyone gets all that they need.
I really don’t know what the answer is. Both of my children would say that they wouldn’t have it any other way, as would many other carers. It would be great if the support system in place by so many charities was able to be funded and able to do their jobs without being shackled so much.